5 months already :(

Wow I didn't realize that it has been so long since my last post. Having two little men all day keeps me pretty busy. Well Jack had his re-check with the cardiologist and she said everything looks great and seems to working the way it should. He still has the small whole in the middle of the top two chambers of his heart and the bottom two but they are getting smaller. The artery that goes to his lung with the extra curve in it is clear and working the way it should and the one that has the little bit of cupping to it is working they way it should as well. He has been making lots of progress with PT but she suggested that he sees an OT to help him with grasping things and with putting weight on his arms. We finally have an appointment with the orthopedic for his feet even though he is putting a lot more weight on them they are still turned in quite a bit. He is getting such a personality on him and is constantly talking. He is such an amazing little man. He is still a little peanut. At 5 months he is still wearing 0-3 month clothing. He has his recheck with the hearing doctors on the first. After that we will know (hopefully) if the hearing loss is permanent and what out next steps will be for that. CDS has given me paperwork about Hearing Maine and suggests that I contact them for information and support. I am not the type of person that asks for help EVER but Jackson is making me realize that I can't do everything on my own and that it is nice sometimes to have someone there to help :)

Grayson is still having issues with his bowels :( They think that he is still constipated and have upped his dose of Miralax. He has also been having accidents with peeing which they think is due to the pressure of having a full colon :( I feel so bad because there is nothing I can do :( He just complains about his belly hurting and isn't as interested in eating. We went to the GI specialist yesterday and he suggested that he has more miralax and that he has to sit on the toilet after every meal which is not easy for him. Last night was out first attempt and he cried and said he didn't want to. Finally he did and only last for 1 minute. No matter what I bribed him with he wouldn't give it. The GI doctor said that it this doesn't help then he is going to want to run some blood work to see if there is something more serious going on. It is starting to affect his mood. He is a little bit more short fused then normal which I am wondering if that has to do with his emotions lately. He has always been a super caring and sensitive little man but lately it has gotten worse. If I raise my voice or send him to his room it as if the world is over. He is also having a hard time with the drop off at preschool. He says he loves it and loves his teacher but cries when I drop him off. Today his teacher said it wasn't as bad as the first day so I am hoping it will eventually stop. His teacher is amazing. She calls him the night before school to let him know that she has his favorite game ready for him and that she is excited to see him. She is so awesome with kids. He also has a little crush on the only girl in his class. Thursday when we got home from school he was playing with his guitar and making up a song about his girlfriend Maggie. :) He is such a loving little man.